Turn to page 84 in your Pediatric Life Care Planning and Case Management Handbook. Read Number 10: “Life Care Planning is Multidimensional”. Consider the example provided.
Which other areas of the life care plan may be effected by this change?
The Supply page should change in addition to the Home Care/Facility Care page. Intermittent catheters, which were used at a high rate are no longer needed. This change will result in a lower cost in the life care plan. The Medication page may also change; the life care planner should be sure to review this with the client and confirm any medications with the physician. The life care planner should also establish the routine medical and follow- ups necessary for the surgery and any revisions that may be needed in the future. This is an important component as it can be costly. These items will effect the Aggressive Medical Care page.
If this patient was a female who is hoping to become pregnant in the future, this can have implications for her as well. If she chooses to have the urinary diversion surgery, this may complicate a C-Section delivery. (Women with spinal cord injuries are at a higher risk for C-section deliveries.) This information should be noted within the Future Medical Aggressive page of the life care plan.
The surgery may also have psychological consequences. Although this does not happen for all patients, be aware that this needs to be evaluated. Benefits of the surgery can include: reduced UTIs, greater mobility, and more freedom to be outside of the home, which can lead to changes on the Leisure/Recreational page. This “new freedom” may also effect the person’s ability to obtain and maintain employment indicating changes to the Vocational Component of the life care plan.
Reference: Grisham, S. (2004). “The Role of the Life Care Planner in Pediatric Life Care Planning. In S. Riddick- Grisham (Ed.) Pediatric Life Care Planning and Case Management. (p. 47-91). Boca Raton, FL: CRC Press.). For the 2011 Edition – Pediatric Life Care Planning and Case Management, Eds. Susan Riddick-Grisham, Laura M. Deming, Pg. 86.