1: American Burn Association

The American Burn Association is dedicated to improving the lives of individuals affected by burn injuries. The association accomplishes this through education, research, patient care, and advocacy. This website is useful for life care planners as it provides links to guidelines, links to burn centers, foundations and injury sites, and valuable information on coding.

  • Visit the American Burn Association website at: http://www.ameriburn.org/index.php.
  • By placing your browser on the “Verification” link, you can click to access “Guidelines”.
  • You can also access “Verified Burn Centers” from the “Verification” link.
  • By clicking on the “Resources” link you can access publications, coding information, the newsletter, a burn incidence fact sheet, and useful links.

2: The Phoenix-Society for Burn Survivors

The Phoenix- Society for Burn Survivors was founded by Alan Breslau in 1977. This site provides information to burn survivors, professionals, and their caregivers. You can access useful information in the resource center.

  • Visit the Phoenix Society for Burn Survivors at: http://www.phoenix-society.org/
  • View resource information by placing your cursor over the “Resource Center” tab.
  • Continue to explore this site at your leisure.

3: Additional Burn Injury Resources:

4: Pediatric Burn Injury Rehabilitation Model System

Currently, the National Institute on Disability and Rehabilitation Research (NIDRR) has sponsored four burn injury rehabilitation model systems. One of the four model systems, the Pediatric Burn Injury Rehabilitation Model System of the University of Texas Medical Branch, in Galveston, TX focuses on the treatment of children who are affected by burn injuries. Life care planners should be aware of this model system in the event that a referral for treatment needs to be made. The model system also conducts valuable research regarding children and burn injuries. Remember, there are also other specialty centers that focus on the treatment of children with burn injuries.

5: Alisa Ann Ruch Burn Foundation

The Alisa Ann Ruch Burn Foundation was founded in 1971 after 8 year-old Alisa Ann was fatally burned in a backyard barbecue accident. The Foundation works with burn professionals, fire fighters, and educators to develop programs for burn survivors. The Foundation provides burn survivor assistance. Of special interest to life care planners are the Champ Camp, the Back-to-School Program, the Young Adult Summit, and the Adult Survivor Family Camp.

  • To find out more about these programs and other programs offered by the Alisa Ann Ruch Burn Foundation, visit their website http://www.aarbf.org/index.html
  • By clicking the “Survivor Services” link, you can find out more information about the programs listed above.
  • Return to the home page, then click on the link “About Us”.
  • This page will describe the Alisa Ann Ruch Foundation and allows you to download their newsletter.
  • Explore the rest of this site at your leisure.

Additional Canadian Resources

6: The BC Professional Fire Fighters Association Burn Fund

The BC Professional Fire Fighters Association Burn Fund is a registered non-profit charity dedicated to burn prevention, as well as burn survivor support and recovery programs in the province of British Columbia.

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