1: American Lung Association
According to the American Lung Association, lung disease is the number three killer in America, and is responsible for one in seven deaths. The American Lung Association was founded in 1904 in order to help prevent lung disease and promote lung health. Their website has a wealth of useful information for life care planners including access to publications, research, and descriptions of different lung diseases.
- Visit the American Lung Association’s Website at: http://www.lung.org/
- Explore the site at your leisure for information about different lung diseases and resources available to patients and healthcare professionals.
- Bookmark this site for future reference.
2: Allergy and Asthma Network Mothers of Asthmatics
The Allergy and Asthma Network Mothers of Asthmatics group was established in 1985 and supports those hoping to overcome allergies and asthma. This site contains valuable information that will be useful to you in your life care planning practice.
- Visit the Allergy and Asthma Network Mothers of Asthmatics at: www.aanma.org
- Explore the site to learn additional information about asthma and allergy management (at home, at school, etc.) as well as how to deal with emergency situations.
- Be sure to check out the valuable legal and legislative information related to allergies and asthma as well as other helpful resources including information to caregivers of children with asthma and allergies.
- You may also choose to visit the Medications page and check out the podcasts and blogs that can provide additional information as well.
- Bookmark this site for future reference.
3: Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation is a nonprofit agency that is devoted to developing a cure for cystic fibrosis (CF), helping to control CF, and improve quality of life for those with a diagnosis of CF. At this site, life care planners and other professionals can gain access to general information about CF, CF treatments, and current research.
- Visit the Cystic Fibrosis Foundation at: www.cff.org
- To learn more about the diagnosis, statistics about the disease, and CF testing: click the link “About Cystic Fibrosis” located at the top left of the page.
- Now, click on the “Living with Cystic Fibrosis” link.
- This link will give you access to care centers that treat CF, information on CF management in school and at work, information on staying healthy, and more.
- Next, click the link “Treatments” to learn more about the current treatments available to help alleviate the symptoms of CF.
- Finally, click the link “Research Overview” to learn about the past and current research that is being conducted.
- Continue to explore the rest of this site at your leisure.
4: Additional Resources:
The following is a short list of additional resources that you may find useful in your life care planning practice:
- Asthma Tutorial: http://www.medicine.virginia.edu/clinical/departments/pediatrics/clinical-services/tutorials/asthma/home
At this site, you can view a picture of the respiratory system and read additional information about asthma. - American Academy of Allergy, Asthma, and Immunology: http://www.aaaai.org/
The American Academy of Allergy, Asthma, and Immunology was established in 1943 and supports individuals who are providing health care to persons with asthma, allergies, and other immunologic conditions. The site contains patient information and allows you to search for an allergist in your area. - CHERUBS: The Association of Congenital Diaphragmatic Hernia Research Advocacy and Support: www.cherubs-cdh.org
This site contains valuable information related to Congenital Diaphragmatic Hernias including access to current research and support for expectant families, surviving families, and grieving families. - Congenital Central Hypoventilation Syndrome Network: http://www.cchsnetwork.org/
This site contains a link to CCHS network publications that may be useful to life care planners. - The Merck Manual: Online Medical Library: http://www.merck.com/mmpe/sec05.html
This site contains information on the different types of pulmonary disorders. - National Heart, Lung, and Blood Institute: http://www.nhlbi.nih.gov/health/public/lung/index.htm
The National Heart, Lung, and Blood Institute provides information about various disorders to patients and the public. This link will allow you to access information about asthma, COPD, emphysema, and other lung diseases.
Additional Canadian Resources
5: Canadian Lung Association
- Visit the Canadian Lung Association’s Website at: http://www.lung.ca/
- Click on the link “About Us” to read about the Canadian Lung Association.
- Explore the rest of this site at your leisure, and bookmark this site for future reference.
6: Canadian Cystic Fibrosis Foundation
- Visit the Canadian Cystic Fibrosis Foundation at: http://www.cysticfibrosis.ca/
- To learn more about the diagnosis, statistics about the disease, and CF testing: click the link “About Cystic Fibrosis”.
- Next, click the link “Research” to learn more about the current treatments available to learn about the past and current research that is being conducted.
- Continue to explore the rest of this site at your leisure.
7: Additional Resource
The following is a Canadian resource that has a great deal of information and provides information for each province.
